Stehpanie
e-mail: stephohayon@netzero.net
Location: Walnut Creek, CA
Birthdate: June 15, 1980
Onset/Diagnosis: onset- 1) August, 1990 2) December, 1999 Diagnosis- March 8, 2000
Other Health Conditions: none
Surgeris due to Still's: none yet
Current Meds: Prednisone - 40 mg; Methotrexate - 7.5 mg, Floric Acid, Vitamin D, Daily Supliment
Occupation: College Student
Family: Father, Henri; Mother, Louise; Brother, Fred; Dog, Fabrice
Favorite Activities: Shopping, Reading, Partying, Doing what any normal girl my age likes to do, including being me and enjoying my life!
Braden J. Allen
Email: TYAllen91@aol.com
Location: Longview TX
Birthdate: 9-25-98
Date of Onset/Diagnosis: In theory, onset was at birth. First bad
episode was 9-20-99. Didn't sit-up until he was 10 months or walk until he
was 16 months.
Other Health Conditions: Preemie with some bronchial difficulties.
Surgeries due to Still's: None
Current Meds: Motrin - 1 tsp/6 hours, round the clock. Foot and ankle
massages, love and devotion.
Occupation: toddler
Family: Daddy, Momma, & sister, Taryn (6-11-96)
Favorite Activities: Used to not do anything but lay on the
floor and cry, howl, or scream. Since treatments have started in March
2000, he plays and laughs. His gait is still not normal, but at least he's
walking now!
Kim Carlson-Murray
Email: kmm09@health.state.ny.us
Location:
Schaghticoke, New York
Birthdate: 04/22/64
Year of Diagnosis or Onset: 1981
Other diseases/health problems: None
Surgeries as a result of Still's: Thoractic surgery to relieve paracarditis
Current Medications: None, in remission since 1991 :-)
Occupation: Graphic Designer
Family: Married with twin (5 year old) boys
Favorite Activities: creative stuff: sewing, drawing, painting, playing w/ my kids
Steve Urban
Email: SUrban@aol.com
Location: Newport News, VA
Birthdate: Oct 29, 1962
Date of Onset/Diagnosis: July 1995
Other Health Conditions: Anemia
Surgeris due to Still's: none
Current Meds: Prednisone, Plaquenil, methotrexate, folic acid, imuran, naproxyn, calcium
Occupation: Early Retirement from the Military
Family: Married to a witch (pagan), 7 year old daughter, 1 cat
Favorite Activities: camping, gardening, hunting, reading, writing
Becky Reeves
Email: BeckReeves@aol.com
Location: Dallas, TX
Birthdate: Sept 5, 1971
Date of Onset: May 1999
Other Health Conditions: None
Surgeries due to Still's: None
Current Medications: Prednisone 40mg, Celebrex 200mg, Codiene, Precodan As Needed for Pain( Currently 3 times a day) Prevacid As Needed, Ambien As Needed for sleep
Occupation: Administrative Manager
Family: Single, Boyfriend for 5 yrs, 2 dogs-Shibu Inu 4 yrs, Border Collie, no kids
Favorite Activities: Traveling, jet skiing, NOT BEING IN PAIN!!!!!
Rhonda Gale Creely
e-mail: myrainbow@freewwweb.com
Location: Greenville, Mississippi
Birthdate: November 27, 1956
Year of Diagnosis: 1994
Other health conditions: ocular migraines
Surgeries related to Stills: none
Current Medications: Plaquinil, Vioxx, Imuran, Maxalt(as needed for migraines) Glucosamine/Chondroitin, Vitamin E, Folic Acid,
Family: I am divorced. One son who lives with me
Favorite thing: RAINBOWS! I love them!! They are so full of hope and promise.
Favorite saying: "To enjoy the beauty of a rainbow, you have to first put up with some rain!"
Deb Bartl
mail: dob38@yahoo.com
Location: Fayetteville, PA
Birthdate: 09-16-59
Date of Onset/Diagnosis: AprilMay 1999
Other Health Conditions: Hypothyroidism, endometriosis
Surgeris due to Still's: none yet maybe a lymph node
biopsy in the next few weeks
Current Meds: Prednisone - 40 mg; arthrotec 2xday,
aracept for the itching with the rash, levoxyl .125mg
per day (thyroid) zoloft 100mg per day.
Occupation: artist, library technician, photographer
Family: husband, one daughter, one dog, one cat
Favorite Activities: used to be rollerblading
mountainbiking anything physical, now i am happy to
have the energy for a daily walk, would like to be
able to exercise but i am still too sick.
would love to hear from others who suffer with this
disease, it can be very lonely suffering from this,
not too many people have ever heard of this disease,
nor do many people have the patience for it.
Cathy Ledsome
E-mail: mcledsome@mindspring.com
Location: Plano, TX
Birthdate: October 6, 1971
Onset/Diagnosis: Onset - March, 1997 Diagnosis - October, 1997
Surgeries due to Still's Disease: Left hip replacement - June, 1999 Right hip replacement - December, 1999
Current Medication: Methotrexate 22.5 mg, Prednisone 7.5 mg, Plaquenil 200 mg 2/day, Naprelan 500 mg 2/day, Prilosec, Vitamin E, Oscal w/ Vit. D, One A Day, Folic Acid 1 mg, & Slow FE
Occupation: Second Grade Teacher
Family: Husband, Mike; Mother, Cathy (also); Father, Jim; Brother, Jimmy; and Dalmatian, Shelby
Favorite Activities: Shopping, Reading, Swimming, Sharing time with family and friends
Lisa R.
Email: LKR06@aol.com
Location:
Houston, Texas
Birthdate: 4/6/66
Date of Onset/Diagnosis: Onset 4/6/98
Diagnosis - 10/22/98
Other Illnesses/Health Conditions: None
Any Surgeries as a result of Stills: None
Current Medications: High dose Aspirin Therapy
Prednisone, , Celebrex, Plaquneil, Prevacid, Elavil, Folic Acid, Calcium w/
Vitamin D, Vicodin (as needed)
Occupation: Sales
Family: Single
Favorite Activities: Travel, Antiquing/Junkin', movies..movies
and more
movies, nice dinners out. Working out was my favorite until I became ill.
It WILL be my favorite AGAIN! :-)
Christina Foster
Email: greywolf@frontiernet.net
Location: Otisville, NY (about 70 miles North of NYC)
Birthdate: June 10, 1970
Date of Onset/Diagnosis: 11/97
Other Health Conditions: RA, colitis, diverticulosis, high blood pressure, vertigo
Surgeris due to Still's: none (yet )
Current Meds: Enbrel, Medrol, prednisone, plaquenil, tenormin, and calcium
Occupation: Administrative/Management in Local Service Provisioning for local telecommunications company.
Family: 2 sons, Sean & Nicky. 2 cats Snickers and Missy
Favorite Activities: arts & crafts, painting, reading. I used to be in the volunteer ambulance corps as an EMT (can't do that anymore), but I still like to keep up on medical knowledge/first aid/etc.
Shannon E. Wagstaff
Email: crimsons@cyberhighway.net
Location: Parma, Idaho
Date of Onset/Diagnosis: Onset--August 27, 1999, Diagnosis--October 12,1999
Other Health Conditions: None
Surgery due to Still's: None (yet)
Current Meds: 3,900mg Aspirin, 60mg Prednisone325mg Iron, Multi-Vitamins, 20mg Prilosec, 2.5mg Ambian (sleeping pill)
Occupation: Housewife
Family: Dan, Husband of 9 years, Son Ivan 7, Daughter Nikki 5, Daughter Laura 3
Favorite Activities: Crochet and being with my family and my mom and dad