Our Mission Statement
The purpose of the International Still's Disease Foundation is to:
Provide support to those who suffer from Still's Disease
Encourage
and facilitate communication between Still's
Disease sufferers
Provide information on Still's Disease to those with the
disease, their families, and health care workers
Increase general awareness of Still's Disease
Since we are a non-profit organization we rely solely on donations. If you would like to make a donation to the Foundation please contact Carole Whaley
You can also help us raise funds when shopping online at Amazon.com. Amazon will donate a portion of every sale that is generated from the links of our website. To shop at Amazon and help our foundation please visit Amazon through our BookNook
The Executive Board Members
President
Tom Kufahl- tkufahl@pcpros.net
retired
from the teaching profession, Tom created the Stills Disease Mailing List that
has brought us all together. Tom is the glue that
holds our group together, thank you Tom! In addition to his work on the
Stills Mailing List, Tom has a menagerie of animals that live with him in
Wisconsin.
Co-Vice Presidents
Carole Whaley - Cat49@aol.com
Legally
named Carole Triller-Whaley, but usually goes by Cat (there are so many Carole's
on our list, this makes it one less to be confused about..lol ) She lives in
Summerland, BC, Canada.
She was dx with AOSD five years ago this December, prior to that dx was told she
had Lupus, before that (during the BIG FLARE) it was suggested that she
had Lymphoma,and would likely die..so all in all the diagnosis of AOSD was an
improvement!
She has been on CPP (disability)for about 4 yrs now, and wishes that she could
find a way to re-enter the workforce.....Before Stills, she was a Systems
Analyst specialising in Transportation (Trucking industry).
She was fortunate enough to find Joyce Irving 8 months after being dx
and she in turn introduced her to Tom and Aleeta, way back then there were about
25 or 30 of us.... over four years ago..
Beth Gilleland- EG4@aol.com
I was
diagnosed with Stills nine and a half years ago. I have been a high
school teacher for 12 years in Houston Tx.- a job which I love! I enjoyed
a wonderful 5 year remission and look forward to that again very soon! In
spite of Stills I was fortunate enough to complete my masters
degree, a goal which I really wanted to achieve, Stills or no Stills. I
feel very fortunate to have found this wonderful group- not only is it
informative, but it has become a second family to me! Thank you Joyce
Iriving and Carol Whaley for finding me and Tom for creating the list!
Treasurer
Connie Hart harley09534@aol.com
the
treasurer for the foundation. She was diagnosed with AOSD in 1989 after
being ill since the end of 1987. Her goal is for to continue
to learn about this disease and keeps educating others what we go thru.
Secretary
Kate ktkate10@aol.com
Kate is 26, and lives in Largo, FL. She was diagnosed with Still's at 17, and has e been in remission for 7 years. Despite Stills, she graduated first in her class, and attended North Central College in Naperville, IL on half scholastic scholarship. I graduated with a BA in Organizational Communications, June 95. I am now starting my own business making and selling buckwheat hull pillows for people, pets and special needs... Oh yeah, I have been a member of the group since 95!
International Still's Disease Foundation
PMB 284
P.O. Box 692068
Houston, Tx. 77269-2068