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Ben Lynch
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Finally came across your page with the
wonderful help of Cat. I'm writing this for my son Ben who was diognosed with
Still"s in 1995, when he was five.
Ben"s medication is presently Naprosyn
10mls twice daily
Folic Acid !mg once daily, Prednisone
10mg & 5mg alternate days, Methtrexate
25mgs once weekly (will have injections soon)
Losec 10mgs once daily, Jevity
1000mls x 120mls per hour
He requires gastrostomy feeding at night as he
does'nt maintain his weight very well. Ben has been recovering from peunomia
which set him back really badly. He has had three operations for multipule
steroid injections and his hips are the biggest problem of all. We would like
for his hips to be injected this year but as usual it's up to the Orthopods to
decide that Ben has to wear hip to toe splints at night as well as hand rest
splints both at night and during the day(if I can get him to keep them on)
We have a wonderful Rheumatologist called Dr
Joe O'Callaghan with a wonderful heart and it's well known that Ben is a
favorite with the Brisbane Hospital team, were working on Ben having regular
visit to RCH(Royal Childrens Hospital,Brisbane) They really know how to handle
him and getting what they want out of him (something I have learnt that I fail
in miserably lol)
He's an excellant kid but suffers from
deppression quite often but I refuse to put him on antidepressants at
such a young age.
Well I've finally touched base and really look
forward to hearing from the Still"s team.If I can be of any help down
here in sunny oz just let us now
Best Wishes to all
Karen and Ben
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