Welcome to the Still's Disease
Please read the
"Code of Conduct" below before subscribing to the mailing list.
Please join our mailing list if
you have this disease or want to learn more about Still's Disease by being in
contact with others. At times it generates lots of mail, as being in touch
really helps those of us who want to know other people with this disease.
To join the mailing list send
an email to firstname.lastname@example.org
You should receive a welcome letter from
If you have any problems send an email to email@example.com
To unsubscribe from the
mailing list send an email to the same addy. firstname.lastname@example.org
Please read the
following Code of Conduct for the list:
The following is the Stills
Disease "Code of Conduct". A few guidelines to make your communication
with and between our members easier.
In the Interest of all of the Stills Disease Members, the "Board"
(named at the end of this page) felt that a "code of
conduct" be put in place so that we are all on the same page. ( so to
speak) Members of our group also voiced their concerns, so, in response to that,
here we are!
We have many new members, some new to computers, who may not know that there is
such an animal as "netiquette". The following is meant to help new
comers to the list as well as our senior members.
Please know that this does not mean we are attempting to stifle the caring and
supportive environment that we have all come to rely upon. The list has grown so
much in the last six months, and it has become obvious to everyone that in order
to control the flow of mail, and get it going to the right people, some
guidelines are needed. These are very basic. Please do your best to follow them,
IF you have any questions or suggestions please e-mail one of the members named
at the end of this.
**Introduce yourself** when you are new consider posting a "Herstory"
or "History" to the group, telling us about yourself, and your
connection to Stills Disease. You don't have to introduce yourself right away,
it's fine to sit back and read the posts and see how it all goes ( this is
called lurking by the way)
** Always include a Subject line in your message** make the subject line
meaningful. If you are replying to a message, but are changing the subject of
the conversation, change the subject line to reflect that. Include enough of the
original message to provide a clue as to context. Pay careful
attention to where your reply is going. Ask yourself if your reply is REALLY
** Some mail programs allow a signature** somewhere in the e-mail, perhaps you
could use it to provide your personal E-mail address. Apparently there are some
programs that don't show the address of the poster easily. To make it easy for
everyone add your addy to the post somewhere.
** Ignore Provocation** Reply by private mail to any message that irritates you.
If you really can't follow that suggestion, then write a scathing letter to the
poster ~ not to the group/list. While it may be satisfying to get outside
support, caring an argument onto a discussion group or mailing list
is both impolite and uninteresting to most of the other participants.
** Use of all capital letters is generally interpreted as SHOUTING.
** Be courteous , handle disagreements privately.
** Use private E-mail if you want to write things like "I agree" or
"good post" or "I liked your whatever" then send it directly
to the other member. Use private E-mail basically for anything that is not of
interest to the whole group.
** Above all else, remember that E-mail is about communication with other
people, when you compose an E-mail read it over before sending it and ask
yourself what your reaction would be if you received it!
** We cannot emphasize strongly enough, that no one wants to alter the wonderful
information, support, laughter, and tears that this list has been built upon. We
ask that you read over the code and govern yourselves accordingly. No one should
create or have to receive painful and angry e-mail on a personal level. We're
"still" here to read, and commiserate or when we need to
"vent", cause lord knows we need to do that too, but the list should
be a caring place as well as informative.
We believe that we need to direct all of our energies in fighting the disease ~
not one another
Again , if there are any questions or problems, please contact any one of the
Members named below>
Tom Pres and Founder Tkufahl@pcpros.net
Beth Co. VP
Carole Co. VP
Connie Sec/treas Harley09534@aol.com
Thanks for joining our
mailing list !!!!!!!
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